#DetectEBV #VirusEpsteinBarr

DetectEBV

A community for action

Our ambition

The Epstein-Barr virus (EBV) remains largely unknown to both the general public and health professionals. Very little research has been carried out and very few people have been diagnosed with it, yet it is the cause of many disorders.
Warned by a number of patients diagnosed after a long period of diagnostic delays, we have realised the extent of the lack of knowledge about this virus. Health professionals, researchers and, of course, patients, have decided to work together through this community to raise awareness about EBV.

 

DetectEBV aims to:

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Raise awareness on the importance of detecting and monitoring this virus

which can have a serious impact on our health and the health of our loved ones.

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To help caregivers learn new habits

by detecting and monitoring EBV more carefully among their patients.

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Helping patients break out of diagnostic delays

the number of EBV-related diseases is constantly increasing.

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Involve the scientific community more widely

to better understand this virus and find adapted treatments.

Our mission

To show the reality of EBV through …

Three main areas to share the multiple realities of the virus and increase its exposure to both patients and health care providers.

 

Click on each area to learn more

The impact of EBV on human health is a REALITY. DETECTING and monitoring this virus is a NECESSITY.

Β It is time to change how EBV is addressed to match the impact it has on the lives of so many patients.

A collaborative community

βž” Take part and contribute to spreading awareness about EBV.

βž” To provide an opportunity for researchers to share their scientific findings with us.

βž” To offer care providers the opportunity to share their clinical observations and treatment strategies.

βž” To allow patients to share their stories.

βž” To share informative content in different formats (videos, articles, podcasts via this website and social networks).

βž” Distribute as much as possible these contents to massively engage all stakeholders in support of predictive, preventive and therapeutic medicine.

βž” To bring together patients, caregivers, researchers but also institutions, organisations, politicians to make this cause heard.

We are neither an organisation nor a foundation nor a company nor any other structure. We are a group of people from different backgrounds united around the same cause. We have nothing to sell. Our only purpose is to raise awareness of the impact that EBV has on many lives in order to change medical practices.

Un mouvement participatif

βž” Take part and contribute to spreading awareness about EBV.

βž” To provide an opportunity for researchers to share their scientific findings with us.

βž” To offer care providers the opportunity to share their clinical observations and treatment strategies.

βž” To allow patients to share their stories.

βž” To share informative content in different formats (videos, articles, podcasts via this website and social networks).

βž” Distribute as much as possible these contents to massively engage all stakeholders in support of predictive, preventive and therapeutic medicine.

βž” To bring together patients, caregivers, researchers but also institutions, organisations, politicians to make this cause heard.

We are neither an organisation nor a foundation nor a company nor any other structure. We are a group of people from different backgrounds united around the same cause. We have nothing to sell. Our only purpose is to raise awareness of the impact that EBV has on many lives in order to change medical practices.

The impact of EBV on human health is a REALITY. DETECTING and monitoring this virus is a NECESSITY.

Β It is time to change how EBV is addressed to match the impact it has on the lives of so many patients.