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Privacy & Legal Policy

Privacy Policy

DetectEBV is committed to ensuring the privacy of visitors and users of its website and to processing their personal data in compliance with all applicable data protection laws and regulations, including and without limitation the General Data Protection Regulation EU 2016/679 (GDPR).

This Privacy Policy explains how the DetectEBV Collective collects, uses, shares and stores personal data.

What is personal data?

Personal data means any information that relates to an identified or identifiable natural person (“data subject”), such as an address, telephone number, email address, date of birth, gender, health data or location (“personal data”).

Data Manager

For the purposes of the European Data Protection Regulation (GDPR), the DetectEBV Collective, is the data manager, i.e. who is responsible for your personal data and who manages its processing.

Personal data we process

  • Identity data including the last name, first name and date of birth.
  • Contact data including email address, postal address and telephone number.
  • Device data including IP address, browser type and version, browser plug-in types and versions, operating system and user platform.
  • Usage data including information about how you use the DetectEBV website (cookies).
  • Image data including photos

You can refuse to have your browser tracked on this website. This will protect your privacy, but will also prevent the owner from learning about your actions and creating a better experience for you and other users.

You have not opted out. Uncheck this box to opt out.

Purposes and legal basis for processing and storing your personal data


Purpose Legal basis Retention
To receive scientific information of interest sent by users or visitors and to contact them if necessary Legitimate interest of the DetectEBV Collective Time necessary for the purpose of the processing
To answer questions asked by the user or visitor of the website Legitimate interest of the DetectEBV Collective Time necessary for the purpose of the processing
Collection of personal data in order to manage the subscriptions to the Newsletter Legitimate interest of the DetectEBV Collective Time necessary for the purpose of the processing
Publication of testimonials Consent of the person who submits the testimony via the website form 15 years
Collection of personal data in order to improve our website Consent of the website visitors 13 months
To share data from health professionals with patients Consent of health professionals Time necessary for the purpose of the processing


Sharing your personal data

Sharing your personal data

Transfers of your personal data outside the European Economic Area (EEA

No transfer of personal data will be made outside the EEA.

Safety of your personal data

Collectif DetectEBV takes the necessary technical and organisational measures to achieve an appropriate security standard for the rights and freedoms of natural persons, including measures to protect personal data against accidental or unlawful destruction, loss, alteration, disclosure or access to personal data.

Your rights

As a data subject, you have the right to ask for the following rights:

  • Right of access: you have the right to obtain confirmation as to whether or not your personal data is being processed and, if so, precise information as to the processing of your data. You also have the right to request a copy of the information held about you.
  • Right of rectification: you have the right to ask us to rectify, including by supplementing or correcting, all or part of the information held about you.
  • Right to erasure (“right to be forgotten”): you have the right to ask us to delete from our systems all information held about you.
  • Right to restrict processing: you can ask us not to process some of your data. This is known as blocking.
  • Right to data portability: you can request to have your information retrieved in a structured, commonly used and machine-readable format and transferred to other data controllers.
  • Right to object: you may object to the processing of your personal data.

The app of these rights is not absolute. Requests to exercise these rights will always be assessed on a case-by-case basis by Collectif DetectEBV.

Where the processing of your data is based on your consent, you may withdraw your consent at any time, simply and without any justification.

If you wish to receive more information about the processing of your data or if you wish to exercise your rights, your requests can be sent by mail to the DetectEBV Collective by email at  info@detectebv.org

You also have the right to lodge a complaint with the Supervisory Authority of the EU Member State of your habitual residence, place of work or place of alleged infringement if you believe that your personal data is not being processed in accordance with the GDPR.

You can find the contact details of the various European Data Protection Authorities via the following link:


In particular, the Data Protection Authority in France is :

Commission Nationale de l’Informatique et des Libertés – CNIL
3 Place de Fontenoy
TSA 80715
75334 PARIS CEDEX 07
Tel. +33 1 53 73 22 22
Fax +33 1 53 73 22 00

Website: http://www.cnil.fr/

Processing of personal data of people who send us their testimonies

Project : To share the experience of people affected by the Epstein Barr virus and to support them in the fight against the pathology or the symptoms it causes.

It is therefore a question of being able to publish and translate written testimonies accompanied or not by the photo of the witness affected by the Epstein Barr virus, on the documents, web pages and social networks of the DetectEBV Collective.

Your rights

You can exercise your rights of access, rectification, opposition, deletion, portability and limitation of processing with the DetectEBV Collective by sending an electronic request to info@detectebv.org. The DetectEBV Collective undertakes to take all reasonable steps to ensure that personal data is deleted or rectified when it is inaccurate


Internet or paper (worldwide)


15 years


The Collective DetectEBV will exercise all rights of exploitation attached to your testimony and your image.  

The Collective DetectEBV may translate or have translated into any language your testimony. The testimony and all translations will remain the exclusive property of the Collective DetectEBV. The Collective DetectEBV expressly refrains from transferring the present authorizations to a third party. The DetectEBV Collective also refrains from any illicit exploitation, or not foreseen above, of your written testimony and your image, likely to harm your dignity, your reputation or your private life and any other prejudicial exploitation according to the laws and regulations in force.

In the context defined above, the collection and use of your written testimony and your image may not give rise to any remuneration or consideration in any form whatsoever. This express acceptance is final and excludes any request for subsequent remuneration.

In accordance with the European Regulation EU-2016/679 of 27/04/2016, the DetectEBV Collective undertakes to comply with the General Data Protection Regulation (GDPR) which came into app on 25 May 2018.

The personal data will be kept on a computer medium and will be integrated into the processing system under the responsibility of the Collectif DetectEBV for the entire duration of this Authorisation and also for two years after its termination, this in order to allow the proper execution of this Authorisation and to comply with legal obligations. The DetectEBV Collective undertakes to process the data in a legal, fair, transparent, adequate, relevant, limited, accurate and up-to-date manner.


This privacy policy is effective as of 05 october  2022

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