Testimonials
The reality of EBV
Showing the reality of the Epstein-Barr virus
It is by showing the reality of EBV that we will be able to change practices in terms of virus detection and treatment.
This reality is diverse, which is why it is important to increase the number of testimonies. The aim is also to put an end to the common element of all EBV patients: the lack of diagnosis and diagnostic delay.
Whether you are a patient, a health professional or a researcher, your experience matters!
Videos testimonials
Susagna Muns | What is behind EBV?
Written testimonials
I have treated numerous patients whose lives were transformed by restoring stability to their immune system following Epstein-Barr virus reactivation, significantly impacting their health
About me I am Dr Zenia Flores de Apodaca, specialized in integrative medicine. In my practice, I have treated numerous patients whose lives were transformed by restoring stability to their immune system following Epstein-Barr virus reactivation, significantly...
EBV-related medical wandering is a significant problem, often due to a lack of knowledge about the virus and its impact on health.
It is important for doctors to be aware of the frequency of this virus and the means to diagnose its reactivation, as it gives rise to many pathologies
I am Dr. Pedro Castejón from Murcia, Spain For years I have been in contact with European medical groups working on micro-immunotherapy. As a result of these studies I discovered that the Epstein-Barr virus is a major health problem worldwide. It is as common as it is...
EBV is underdiagnosed because infectious mononucleosis and its consequences have been trivialized
Interview with Christelle Correas - Carer
Cancer : EBV should be considered more widely in routine diagnosis
Presentation : Silvia Gramolelli is an Italian researcher. After obtaining her master degree at Sapienza University of Rome, she moved to Germany to do a PhD in infection biology. There, she started working on oncogenic herpesviruses, in particular on Kaposi's sarcoma...
As soon as there is an autoimmune disease, consider testing for EBV
Country: Germany City: Schriesheim Profession: Dr. in genetics and molecular biology, Gestalt therapist, Naturopath/Heilpraktiker Specialty: genetics, molecular biology, micro-immunotherapy, mycotherapy, micronutrition As a health professional, from your observations,...
I had dozens of symptoms
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? In hospital for my 4 year old son. How did you react? For him it was despite 10 days in hospital and 4 months of severe fatigue. On the other hand, when I caught the virus in my...
I have episodes of severe fatigue with very strong pain and I sleep very little.
Under what circumstances did you find out about the Epstein Barr virus (doctor, internet...)? At my doctor's for whom I am being followed for Lyme disease. How did you react? I had no reaction What are your symptoms? How are you supported (doctor, family,...
I feel tired and I deplore the lack of professional support, being a doctor myself
Under what circumstances did you find out about the Epstein Barr virus (doctor, internet...)? Via serology. How did you react? I reacted well, as long as micro-immunotherapy exists! What are your symptoms? How are you supported (doctor, family, association...)? I feel...
It is essential to be able to offer a more appropriate medical follow-up
Under what circumstances did you discover the Epstein Barr virus (doctor, internet...)? I had a reactivation of the virus following my 2nd Covid injection in December 2021. I contracted mononucleosis 20 years ago. I am now 26 years old. How did you react? Very badly,...
Epstein-Barr virus is often underestimated
Under what circumstances did you find out about the Epstein Barr virus (doctor, internet...)? I was diagnosed with mononucleosis by a doctor about 5 years ago. How did you react? I was very surprised, because it's known as the kissing disease, but I was single at the...
It is important to know all the symptoms in order to best inform patients
Under what circumstances did you find out about the Epstein Barr virus (doctor, internet...)? I got sick in 2020. How did you react? Very bad because I was not informed at all. What are your symptoms? How are you supported (doctor, family, association...)? I have a...
Everything in my daily life is very complicated
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? At the neurologist's. How did you react? I didn't realise how serious this virus was. What are your symptoms? How are you supported (doctor, family, association...)? I had...
I was very surprised by this virus that caused cancer
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? At the oncologist, after the discovery of a lymphoma. How did you react? I was very surprised by this virus that caused the cancer. What are your symptoms? How are you supported...
The medical world looks a bit lost in the face of EBV reactivation
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? On the internet. What are your symptoms? How are you supported (doctor, family, association...)? I have had 3 reactivations. Usually, a reactivation starts with severe fatigue that...
I had to stop working and I hardly have a social life anymore
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? With a blood test prescribed by my doctor. How did you react? I wanted to know more about this disease. What are your symptoms? How are you supported (doctor, family,...
It is very isolating, others do not understand our condition
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? During a blood test. How did you react? I was worried. What are your symptoms? How are you supported (doctor, family, association...)? The symptoms are intense fatigue and a...
Doctors still think that the “chronic” version does not exist!
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? At the doctor's, following a high fever. How did you react? The first time, I waited for it to pass, like everyone else. The relapses as an adult were more complicated. What are...
The doctors couldn’t find out what had made me feel so unwell
Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? I have been ill for 6 years. The doctors couldn't figure out what had triggered my illness. I've had a lot of blood tests over the past 6 years and no one has ever mentioned EBV to...