#DetectEBV #VirusEpsteinBarr

Testimonials

The reality of EBV

Showing the reality of the Epstein-Barr virus

It is by showing the reality of EBV that we will be able to change practices in terms of virus detection and treatment.
This reality is diverse, which is why it is important to increase the number of testimonies. The aim is also to put an end to the common element of all EBV patients: the lack of diagnosis and diagnostic delay.
Whether you are a patient, a health professional or a researcher, your experience matters!

Videos testimonials

Stéphane TEMPIER | EBV: the other battle of a top athlete
Eleni KAVELARA | EBV in athletes
Julie | Her infertility and EBV
Montse | A fighter’s journey
Émilie | The struggle of a young mother
Carole | Mononucleosis at 40
Emmanuel Drouet | EveryBody’s Virus
Charles-Vivien Olivieri | 2 PhDs on EBV
Lilit Tonoyan | EBV and oral diseases

Written testimonials

Cancer : EBV should be considered more widely in routine diagnosis

Presentation : Silvia Gramolelli is an Italian researcher. After obtaining her master degree at Sapienza University of Rome, she moved to Germany to do a PhD in infection biology. There, she started working on oncogenic herpesviruses, in particular on Kaposi's sarcoma...

As soon as there is an autoimmune disease, consider testing for EBV

Country: Germany City: Schriesheim Profession: Dr. in genetics and molecular biology, Gestalt therapist, Naturopath/Heilpraktiker Specialty: genetics, molecular biology, micro-immunotherapy, mycotherapy, micronutrition As a health professional, from your observations,...

I had dozens of symptoms

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? In hospital for my 4 year old son. How did you react? For him it was despite 10 days in hospital and 4 months of severe fatigue. On the other hand, when I caught the virus in my...

Epstein-Barr virus is often underestimated

Under what circumstances did you find out about the Epstein Barr virus (doctor, internet...)? I was diagnosed with mononucleosis by a doctor about 5 years ago. How did you react? I was very surprised, because it's known as the kissing disease, but I was single at the...

Everything in my daily life is very complicated

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? At the neurologist's. How did you react? I didn't realise how serious this virus was. What are your symptoms? How are you supported (doctor, family, association...)? I had...

I was very surprised by this virus that caused cancer

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? At the oncologist, after the discovery of a lymphoma. How did you react? I was very surprised by this virus that caused the cancer. What are your symptoms? How are you supported...

The medical world looks a bit lost in the face of EBV reactivation

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? On the internet. What are your symptoms? How are you supported (doctor, family, association...)? I have had 3 reactivations. Usually, a reactivation starts with severe fatigue that...

I had to stop working and I hardly have a social life anymore

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? With a blood test prescribed by my doctor. How did you react? I wanted to know more about this disease. What are your symptoms? How are you supported (doctor, family,...

It is very isolating, others do not understand our condition

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? During a blood test. How did you react? I was worried. What are your symptoms? How are you supported (doctor, family, association...)? The symptoms are intense fatigue and a...

Doctors still think that the “chronic” version does not exist!

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? At the doctor's, following a high fever. How did you react? The first time, I waited for it to pass, like everyone else. The relapses as an adult were more complicated. What are...

The doctors couldn’t find out what had made me feel so unwell

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? I have been ill for 6 years. The doctors couldn't figure out what had triggered my illness. I've had a lot of blood tests over the past 6 years and no one has ever mentioned EBV to...

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