#DetectEBV #VirusEpsteinBarr

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Epstein-Barr Virus (EBV)

Getting to know the virus

BESIDES MONONUCLEOSIS

Many related diseases: long-term Covid, cancers, multiple sclerosis…

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FREQUENTLY ASKED QUESTIONS

Find the answers to your questions

ABOUT RESEARCH

Links to helpful resources

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END DIAGNOSTIC DELAYS

Because EBV must be diagnosed

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WHY SCREENING IS IMPORTANT

To increase the chances of treatment

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CHANGING PRACTICE

Make Epstein-Barr screening standard practice

ASK YOUR QUESTION

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A PERSISTENT AND REACTIVATABLE VIRUS

Understanding the conditions that can trigger virus activation

FINDING THE RIGHT SUPPORT

Everyone has their own treatment options, but beware of self-medication

TESTIMONIALS

The reality of the Epstein-Barr virus

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Detect EBV

DetectEBV

Patients, carers, researchers: let’s show the reality of EBV

INFORM, SHARE AND TAKE ACTION

Change the way this virus is treated

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SHARE YOUR STORY

Share your experience, your expertise, your knowledge

ASK YOUR QUESTION

Patient-en

" It is important to know all the symptoms in order to best inform patients "

Under what circumstances did you find out about the Epstein Barr virus (doctor, internet…)?

I got sick in 2020.

How did you react?

Very bad because I was not informed at all.

What are your symptoms? How are you supported (doctor, family, association…)?

I have a multitude of symptoms: lymph nodes, insomnia, pain, depression, liver and spleen attacked with the result that I have lost 8kg, with vomiting and loss of appetite. The doctor only told me it was going to be a long time and my family doesn’t understand why it is taking so long.

How does the Epstein Barr virus affect your daily life?

You change forever when you have had this disease and you are not the same afterwards. You don’t have the same energy.

Why do you think it is important to raise awareness about the virus?

It is important to know all the symptoms in order to best inform patients.
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Patients

I had dozens of symptoms

I had dozens of symptoms

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? In hospital for my 4 year old son. How did you react? For him it was despite 10 days in hospital and 4 months of severe fatigue. On the other hand, when I caught the virus in my...