Under what circumstances did you discover the Epstein-Barr virus (doctor, internet…)?
On the internet.
What are your symptoms? How are you supported (doctor, family, association…)?
I have had 3 reactivations. Usually, a reactivation starts with severe fatigue that I try to fight, dizziness, loss of appetite, diarrhoea, digestive problems and abdominal pain. Fortunately, I have support from my friends. But the medical world seems to be a bit confused about the reactivation of EBV. Some even still think it doesn’t exist.
How does the Epstein Barr virus affect your daily life?
In moments of reactivation, I go through a phase where sleep predominates, so it impacts all events both professional and personal.
Why do you think it is important to raise awareness about the virus?
I think the first benefit would be that the patient’s complaints would be really heard and that it would improve management, relapse prevention, etc.
