#DetectEBV #VirusEpsteinBarr

PATIENT TESTIMONIALS

" The medical world looks a bit lost in the face of EBV reactivation "

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet…)?

On the internet.

What are your symptoms? How are you supported (doctor, family, association…)?

I have had 3 reactivations. Usually, a reactivation starts with severe fatigue that I try to fight, dizziness, loss of appetite, diarrhoea, digestive problems and abdominal pain. Fortunately, I have support from my friends. But the medical world seems to be a bit confused about the reactivation of EBV. Some even still think it doesn’t exist.

How does the Epstein Barr virus affect your daily life?

In moments of reactivation, I go through a phase where sleep predominates, so it impacts all events both professional and personal.

Why do you think it is important to raise awareness about the virus?

I think the first benefit would be that the patient’s complaints would be really heard and that it would improve management, relapse prevention, etc.

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Patients

I had dozens of symptoms

Under what circumstances did you discover the Epstein-Barr virus (doctor, internet...)? In hospital for my 4 year old son. How did you react? For him it was despite 10 days in hospital and 4 months of severe fatigue. On the other hand, when I caught the virus in my...